22/02/2026
A little update on our fundraising for Kevin. Incase you missed it Kevin has been diagnosed with a rare, genetically inherited, Muscular Dystrophy.
It is a life limiting illness which can range from mild to severe symptoms. Our beautiful children have a 50% chance of inheriting this from their Dad. It’s expected to be more severe, and show earlier in each generation.
We are fundraising to support the team at Glasgow University, who are carrying out world leading research into this disease which will ensure that treatments in development are successful - there are currently none!
We are so grateful to our customers who have already donated and are going out of their way to help us fundraise.
🖤💚
“We have updated our fundraising goal to £10,000!!
You may, or may not know that we are at £7100!
We’ve had a very generous donation of £5k and we’re just waiting to find out if that person wishes to be named before we pop it over.
We also have our lovely friend Peter Murphy who is donating the profits from one of his comedy shows. The amazing Linda Menzies who is doing the kilt walk - as she does every year - with her friend. The ladies have chosen to fundraise for Kevin this year. Forever grateful to you both.
My sister and I have an event in the works - and I’ve been thinking up something for rare disease day at the end of the month. Hopefully all this combined helps get us to 10k.
Last week we got to meet the whole team who are working on ensuring that we understand everything about this disease so that the treatments in development are successful. They are an incredibly talented bunch and it was humbling knowing they’re dedicating their lives to finding a cure for Kevin, our kids, family members and everyone else living with this.
Interestingly. We know that there are many more people undiagnosed - living with this and having no idea. However, the Glasgow Uni team believe that in a few generations time, this is going to become a much bigger problem, there are already communities where 1 in 500 people have been diagnosed! We need awareness to prevent this from happening and ultimately a cure.
There is currently NO KNOWN TREATMENT for this condition. Although we did get some uplifting news - which I’ll share in another post.
Thank you so much to everyone who has donated thus far. We are truly appreciative for everything - words of support and encouragement, stories of similar journeys, just asking how we are and the constant reminders of the people who are here for us. 💚”
Iʼm raising money to help fund vital research into Myotonic Dystrophy Type 1. Support this JustGiving Crowdfunding Page.