09/04/2026
Catching everyone up to speed!!
Earlier this year I felt a HUGE unexplainable nudge to slow down. Stop. Quit. Whatever… I was developing ulcers trying to balance everything.
I stopped one extra job.
… had numerous offers on the building, but nothing felt “right”… so I just sat still.
My son went on to take 2nd in state & qualify in two events to nationals. Which. In his world. Is like make it to the Super Bowl, twice… but it’s harder. Because only 4 kids get to go in every event. Then. From state he went on to place in the top ten in the nation!!
All the while he had lost 50 lbs & he looked awful…
He also started presenting some other very disturbing health issues.
Drs were insistent it was “teenage acne”. Over & Over… I kept refusing that as an answer… I had severe acne most of my life- and I never had anything that looked like that- or anything that made me lose 50 lbs… in two months…
all the while it was Lupus - presenting in his skin, not his internal organs… Lupus. Not acne.
I just kept pressing.
If you know the history here… this store started. Because of my son. He was so sick & I found a functional Dr who saved it. The way he asked me to repay him was “never stop telling the truth & never stop helping other moms”
So. For three months we have been relentlessly searching for answers. We have spent almost a month in Mexico receiving treatments not allowed in the states. & a week in the hospital here locally.
My whole reason of showing up today & posting this is :
LISTEN TO YOUR NUDGES. DO NOT BLOW THROUGH THEM.
I slowed down. I stopped and now. I am waking up everyday- tending to my very sick son. Thank god I did what I felt instead of what I thought.
We now know he has been diagnosed : BADAS syndrome, LUPUS, & severe ulcerative colitis.
We had zero anything nothing before June… (that we were aware of) so. It’s a bit like Noah. Building an ark without a sign of anything coming…
If you have ever entertained the idea of going to Mexico for care. Please ask me anything. I’m pretty well versed. And. If you ever need a cheerleader for an “off the wall” nudge you have, I’ll be your girl. 🫶🏻
Please continue to lift Roan up.
He’s made leaps & bounds but is not where he wants to be as fast as he wants to be there… I’ll add his go fund me as well in the comments. If you feel inclined to help us get him
Back & forth for his stem cell treatments… they’re trying to rebuild his colon wall… our goal is remission & saving his colon… saving a 14 year old’s colon…
Life is wild.
